Disclaimer: This really doesn’t have anything to do with my normal blog-like posts however, I have chosen to write this in my blog simply because I have so many friends and family that want updates and there is SO much information that it can’t be addressed in a simple text; so please bear with me.
Now that I am cohesive enough, I was eager to find out what really happened during my surgery. Here is what I learned; I was born with a defect in my nasal cavity. There are three tubes that sit on top of each other where fluid and mucus moves through and is connected to the eustachian tubes. The middle tube has a hole at the top of it that allows the fluids and mucus to flow properly through the eustachian tubes, but I was born with two holes. What that means is I am recycling the bacteria and it never works its way out of the sinuses. I made a joke with Dr. Lewis that I knew I was secretly a hoarder at heart. This would also explain all my issues when I was younger because the eustachian tubes were not getting circulation, so the ear drums were in a constant state of retraction. The other complication with this middle tube was its size. She had to remove some of the tube to make it smaller in width and used some of the excess tissue to block the extra hole. What this larger tube caused was issues also with my adenoids becoming enlarged, again because it was holding all the bacteria and infection. Because the adenoids were so inflamed, it caused my septum to become deviated so after removing the adenoids she corrected the septum. Her concern is that the septum may not stay corrected because my nose is so small (ha! my little brother teasing me about my big nose all those years is now officially disproven), and while she has made more room in there, over time I will probably see another sinus infection or cold and that causes swelling. Hopefully by maintaining through my ENT and allergist, we can prevent my septum from moving again!
The cyst and warts that were removed from my throat and cheek sinus cavity are not cancerous; however, I do need to be cautious of the warts because after having them “typed”, they are in the cancer family so I will need yearly check ups, especially because my white blood count is a little on the high side already. She is mildly concerned about the blood count, so I am going for further blood work with a little more in-depth look at things.
Now, here’s the “not so good” news…….
After spending 2.5 hours today with Dr. Lewis trying to remove the mucus and blood that has collected over the past week from the surgery, there is a very strong possibility I will be brought back into surgery tomorrow afternoon. It was a long appointment and was rather painful and overwhelming, but basically I have developed a hematoma. Part of the problem is she is unable to reach the hematoma fully because of all the swelling. At this stage in the healing process, I should not have this much swelling; although she did say that she somewhat expected my healing process to be a little slower due to the Fibromyalgia and Chronic Fatigue Syndrome. She was able to stick a needle into part of the hematoma and suck out some of the blood but not enough. Sounds gross, right? Try listening to it and then feeling it! SO GROSS!!!!! Her concern is that the hematoma will start to congeal making it a breeding ground for further infection, so she realizes she is being a little aggressive; however, she is also taking my medical past experiences into consideration. My body likes to hide infections and other problems. The game plan is to increase the Prednisone today/tonight and use more Afrin to see if we can get more of the swelling down and return tomorrow morning at 8:30am. If the swelling has reduced, it could be a huge help in her being able to fully get to the hematoma, but there is still the possibility the hematoma is too large and too deep to get without surgery again.
So, I’m feeling a little tired and overwhelmed and quite honestly, disheartened. I do realize I have an excellent ENT who is treating me based on ME and not the “typical”….she did tell me on a few different occasions that I was special…OK she said I was a special “case”, but I’m going to choose to hear the first option! 🙂 Anyway, if I have to be brought back into surgery, it will happen tomorrow afternoon, so I will try to update you as soon as I possibly can.
I’m trying so hard to recognize the positives, but my emotions are betraying me. I really am grateful for Dr. Lewis and her aggressiveness in making sure I don’t suffer anymore than necessary; and I really am grateful we are still moving in a forward direction…so much has already been corrected through this surgery; and I really am grateful for the relief I have felt over these last two days (let’s face it, the first 5 days SUCKED out loud); I can’t tell you how grateful I am to my family and my friends that have watched over me so sweetly over the past few years; words can never describe just how much love I feel from those who have chosen to get to know me despite my chronic illness; so why do I want to break down crying? UGH! I feel like such a wimp. I know how stupid that sounds out loud, but I can’t help it. I feel defeated; I feel disheartened; I feel overwhelmed. I feel like every time someone asks me how I am doing, or how I am feeling, I can’t just say “GREAT”! I AM DOING GREAT!